Learn more about his condition~

http://www.ninds.nih.gov/disorders/periventricular_leukomalacia/periventricular_leukomalacia.htm

Jarett 20 months

Jarett started walking July6th 2011 praise God!!! He took a few steps and walked in a 360 then walked back to the couch and then walked again turned in another 360 and back to the couch and he was so excited and so was the rest of the family!! again~  Praise God it was all him showing off his work !!! wow!!
 Jarett has grown in confidence but still has trouble with balance and fears of ceertain things unless he sees older brothers do it . its usually the sensory things like being placed in a blanket and swung like a swing he used to totally freak out but when his brother brent mason got in the blanket which made it heavy Kathy and I still managed to pull it off and Jarett had so much fun as long as bubby was in it with him.. awww monkey see monkey do..lol Brent mason has been a awesome motivator for him . Now my baby has 2 therapist kathy and Danielle and were having a meeting to see if nicole will come aboard hes been approved for speech therapy . the only thing right now im really concerned about is that hes still on the bottle and ive tried sippie cups but i think he doesnt have the suck refelecx because when he was born he never took a pacifer he would hold it in his mouth or spit it out but never sucked on it .. the bottles {nipples we used were fast flowing cause he always had difficulty with the slower flows so this all didnt make since till just the other day ... ppl have tried to tell me about this sippie and that so i bout him one that doesnt leak and has a straw but nipple was like a bottle but he couldnt get the hang of it and got discouraged bless his heart.
Now on his walking he loves to take walks after dinner but he still has issues with his coordination and balance but he is such a trooper... he loves french fries and pizza which he calls eeezzzaaa !! lol .. he has brought so much joy to my life i countinue everyday to thank God for all 3 of my kids and all I want is to help each one of them to be the best they can be but I worry a lil about my lil man cause im mommy! <3

love you Jarett~ mommy will always be here getting strength from Jesus to help you through your Journey of Life~ <3

My hunney bear is 18 months old

Wow its taken me awhile to get back due to kids being sick and etc ....
anyways , Jarett is doing so good in his therapy I have videos that im figuring out how to post them so you can see his improvemnets with torticollis and pvl.....
Today is May 20 ,2011 he took 2 steps and fell on his own I was so proud and shocked at the same time lol .. granted he still struggles to try too walk on his own we still have to hold his hands & he still has to have physical therapy and going to start occapational therapy soon . Im so proud of his accomplishments.
His faveoraite toy at the momment is a ball , doesnt matter the size of it he will pick one up and throw it with all his might .it so wonderful watch all the wonderful new lil things hes starting to do and accomplish . his vocabulary is really better , he can say mamma, dadda, pappaw , bubba {middle brother} azacc { oldest brother} nana, nano, no , byebye, hifi{ hgh five} baba {bottle} iwaeh{ i walk}  baby lingo is great but he has a new one im rying really hard to figure out but nope im not able  too lol still after 3rd child havent mastered baby jibbirish.  His fave thing to do is climb the stairs and everything else he can possible can.
Jaretts Journey has been sweet and rewarding.. I praise God with every accomplishment that he makes ,every mountain he conqueres... wow ~ Thank you Lord for my 3 beautiful sons and for the oldest two that helps me daily with Jarret. ~

UDATES YOU CAN FOLLOW THIS BLOG FROM WWW.JAGGEDCROSS.COM

3-1-11 { 15 mon}

Jaretts physical thrapy is going great , but man he is jabbering up a storm  lol.. Brent mason is such  a big help to that cause them too are like two peas in a pod .. this all usually all happens at the dinner table lol . they crack me up cause sometimes Jarett wont eat and I can act  like I'm giving it to Brent and then he will want it ..lol they laugh and giggle and get really loud ! as of now Jarett can say momma but he chooses to call me ehheheah why I dont know , he calls Brent bubby and Zacc -a sack lol its halirus with Zacc  he will look upstairs cause he knows Zacc ususally stays upstairs in his room , and Brent stays down stairs playing with him. Hes soon to be 16 months old and still isnt walking but by faith and therapy we will see it happen .. hes doing alot better , his torticollis is doing alot better ,he still has his days .. where I think it bothers him and hes just unhappy, I guess if we had a stiff neck that hurt we would be cranky too... I just love the fact that his brothers really look out for him in their own ways , Zacc helps take him to the car or in and out of stores and etc and brent plays and keeps him occupied so when thier at school he really misses them and whines alot till they come home awww brotherly love ... <3
so now ill give you a list of words that Jarett can say , he can say  bubby , zacc, dada , nana, nano, no, stop, sock, tries to say jesus  and raises both hands { brent taught him that} lol ... wow , ohhh ohhh . oooooooohhh like when the water is cold or when hes cold , boo boo, he has a good range or varitey of words that im so proud of ..

Today his Occupational therapist came to do a test on his sensory cause alot of pvl{ peri ventricular leuko malacia } has sensory issues and Jarett isnt a lovey bug like his brothrs are but when they iniate huggs cuddling he pushes them away , he doesnt like you touching his hands , feet or water tempeture like bath or bottle being cold , he likes it warm the min his bath water is cold or chilled he wants out no more playing for him lol... now if I add warm water he will play longer splashes and splashes till I have to get towells on the floor or a mop but its good for him cause I noticed something today that I never noticed or I guess never paid any attention to it but on his right hand he had trouble holding the toy putting in in a slot it looked like his hand was having trouble just like his foot . I told the occ here  to look and she noticed the same thing , its like seeing a hand of a person who had a very mild stroke or cerebal palasy, Not saying at all he has that but from what ive researched on his condiotion its alot like cp... so we will just have to keep an eye on him but Im telling you now that child is so full  of energy and life he doesnt let anything stand in his way .. he crawls and he stands but hes not walking just crusing ... but hey thats a blessing im not complaining!!! praise God ! wow he speaking more words than most kids his age.. He smiles a beautiful smile ,and hams it up for the camera... I just love it ! I think it just runs in the family!!! lol ..Jarett teaches me everyday that life is to be taken as a blessing not as its something im suppose to be given and seeing every lil mile stone he makes I give God All THE PRAISE!!  t\He loves music will hop beee bop his head and now tries to sing !!! wow !!!  

I really have to watch Jarett at times cause he knows his brothers look  out for him and he bullies poor brent  bless his heart I  have to tell him no you dont do that to him and brent with his loving heart says mom its ok Baby Jarett doesnt know better yet till one afternoon jarett cococked him with a metal bar I dont know where it came from or what it went too, brent was lying there watching tv and he decided to whack brent on the head with it , brent started crying and his head was bleeeding then he was like you need to spank him mom lol... I corrected Jarett by smacking his hand saying no look you hurt brother but when he seen brent crying i think that was punishment enough really cause he didnt mean to hurt him he was just trying to play and get his attention . they hugged a lil and brent gave him a kiss which is so funny cause Jarett throws his mouth wide open lol its halirus to watch babies learning how to kiss their familys its like ok we open our mouths as wide as we can and see what happens ... lol . well in a about a few days he will he 16 months old and then we will talk to his neurologist about what we need to do about him not walking if we should give thearpy more time or put him in braces or what would be the best for Jarett.... will keep ya posted on my lil hunnybear.. keep him in ur prayers and God bless!!!!
ohh his fave tv shows :
Bubble Guppies, chuggington, Jungle Junction and Imaigination Movers and Fresh beat band , anything thats sings dances he absolutely loves ~ his fave food is a supreme pizza from papa johns lol .. weve hd several pizzas from local places but he has chosen them lol. He likes to have his shoes and socks on and be dressed lol... his fave toy is anything that makes raquet !!!!! ohhhhhhh forgot to mention his first encounter with a cat!! that as the most funniest thing for the cat and for Jarett.
they chased one another aroud the room she the cat {Dustie} is 7 mon old and bless her heart and never been around a baby and was like what in the world is this slobbering thing on two legs that chases me have you brought in here but her curosity couldnt stand it after she figured out it wasnt going to eat her lol i think she had fun with him cause he was totally facinated by her cause she would run and hide and smell all off his things even the bags we brought in .. ya know i went back the following weekend without him and the stuff i had in the bag had his scent on it and th whole entire time i was there she was inside that bag like looking for him it was the most adorable thing ....

meet 7mon old Dustie

Lynne thought this was cute she cut it out of the newspaper for Jarett and Dustie

looking for Jarett in the bag!lol { thinking I know hes in there I can smell him!!!! lol

That was the sweetest thing Dustie and Jarett and she had him crawling all over the place so it was good exercise for both of them lol!!! I guess Ill have to take him back  over for a playdate..lol

Jarett journey part 1 cont.......

Jaretts Journey part1cont....

lol~ I love this picture~

When Jarett was born I noticed that when you picked him up a certain way he would cry but I thought Iwas just from being sore  or sometimes baby just did that but you know as a mommy when something doesnt feel right.. so I would talk to his doctors which the doctors I take him too are actually nurse practicioners but they are wonderful with him.. They noticed by doing his well child checks that Jarett was ok but he he had trouble turning his head and they suspected Torticollis but didnt want to just jump in and diagnose him with it until seen a neurologist..
well they showed me some things to do with him as he developed and getting bigger and we could keep an eye on him.. well as time went on I became really ill with my condition and had to be hospitalised for a suregery ,due to a bowell obstruction the very same one that had been plauging me the whole pregnacy and Jarett was  4 mon old and here Iwent into the hospital and during my month stay which was only suppose to be a week but due to fevers and etc they had to keep me.. well April-May-2010 a flood hit where we lived and while I was in the hopsital I was unaware that I too had lost my home but noone wanted to tell me due to the stress they didnt want me to know so noone told me till it was time for me to be released.. then out comes the news !!! wow here I was praying for all these ppl who lost their homes from watching news but odd I never saw the news when they showed camp nelson how odd was that?  and had no idea I too lost mine Iwas devastated  shocked, confused, scared you name it!... which who wouldnt be I lost alot of things I can never get back but... the one thing Im thankful for is my family! I had to move into my grandmothers with Jarett and began to focus on Jarett and his needs and me healing  so with her already helping us during the time I was in hospital with watching Jarett for us she began to notice things about him so when I began staying there her and I teamed up and was like this is what thier saying and this is the exercise she showed me lets not wait and start working with him regardless so when he goes to neurologist we can have a better look.. well that summer I stayed with her while searching for a new place to live trying to hurry up and get my family back in one place we were all scattered like ducks..lol  , you know even in some tragity God brings blessing out of those.. cause even though we lsot our home in a flood and had to move in with my grandmother , she had just lost her mom a month after Jarett was born and Jarett was able to bring her unconditonal love that she needed .. you know children are the greatest in the kingdom of heaven ... his love and complete needing her is what helped her get through some really roght times and he needed her cause his mommy was to sick to be able to for him the way he needed.. seh took car of us both and ill always be thankful for that.. God helps us through times and brings ppl together for all sorts of reasons just to show his love, mercy and grace and that summer I like my grandmother and jarett all got to share that together. well she and I started every morning after breakfast and few time during the day working with hmi getting him to reach for toys, turning his head and really encoureging range of motion and I believe thats what really began to help him so that its not so hard on him now .. he would roll and roll and roll it was the funniest thing to see him get where he needed to go and just roll ..I was so delighted  and would clap with appraisal and he would light up and do it again... Jarett is so enthusiactic about things he does , he loves to be praised { what kid doesnt} lol.... my grandmother which we call mammoo was such an  encourgement to him.  he loved to hear her say awww Jarett I love you thats so good and You did it baby boy , and thats how the name hunneybear came to life caues she would call him her hunneybear~ his dark brown eyes would just light up....lol it was neat to see the love she needed from the lord was coming fast and strong through Jarett.. isnt it neat how God uses lil ones to show how powerful his love can be? its pure and powerful!!!!! wow ! im so thankful to have had time like that ya know cause here I was cut fresh out the hosptial I was unable to lift anything over 10-20 pounds and baby J was everybit of kicking 20 pds easy! sooo her picking him up and helping with bathing and etc and taking him to drs or was such a great stress reliever..
Everymorning Jarett and Mammoo would go outside while  she let me rest and she would sit on swing or water her flowers and she would put him in his walker and let him play and they would watch birds that would fly up on the porch and he would giggle with delight and raise his hands an point with excitement and this too in itself was therapy cause he wa having to turn his head and move his arms.. bless his heart he didnt know he was having therapy he was having a ball outiside till it either would get to hot or playtime was over..
He really enjoys mornings , most kids are crabby and cranky , not him , granted he whines to get ur attention but then when he sees you , that beautiful smile comes across his face and its like awww that is so sweet..
Aug 2010 we moved into our new apt and now were getting in the swing of things and Jarett hadnt learned to crawl yet he would just scoot or roll around like a bowling ball to get where he needed he was 11 mon old when he stareted crawling he would do the army crawl on his belly and use his arms and elbows but he would hold his left leg in the air .. so I videoed it an thats what I use for the Neurologist to see how he learned to crawl and etc.. the muscles in Jaretts legs and ankles are weak just like a newborns or he still has the elasticty in them and you can bend his legs and feet and its like rubber . when he crawls you can see it .. . at this time he wasnt pulling up yet but was working on it lol.. every lil milestone helped... well I still had trouble with my belly since getting out the hosptial statying sick and pain it was horrble so Iwent back to see the surgeon and he ordered me a test and low in behold I got a phone call on a fri night that said we have to do emergency surgery be here tuesday to be preped. so once again here we go.. Lord Why? well Jarett is back n forth from home on weekends to during the week at my grandmothers while im in the hospital for several weeks  cause of my hubbys work schedule it was better that way.. It was diifucult when I came home cause I didnt have anyone here to help me during the day as much I needed cause everyone worked or live to far away But now Idid have my friend Jennifer and my niece come stay with me for a week to just be here in case something happened but for the most part I did things on my own..My niece Keirra came for the weekend to help with anything I needed , bless her heart .
ok.. oct...2010 Jarett started his full blown crawl everywhere ! hes crawling and a crawling and crawling like crazy! wow!!! WE were estatic when he did . kinda like when ur baby takes its first steps .. yeah Jarett is crawling ..I remember tears of joy filling my eyes seeing him smile and modocking as I say across our living room floor when he then relised he was getting somewhere without rolling from side to side lol...
Jarettts started pulling himself up right before his first birthday then when he would stand , he wouldnt stand for long periods of times, this is when First steps program started coming ot ur home talking with us about in home therapy with Jarett , doing exercises and movements to better help him.. ya know theres cases of torticollis that are worse in other children so im glad that Jarett isnt as bad as it ould have been if my grandmother and I hadnt started working with him when we first started noticeing it.He tries to baby his arm and neck from time to time I guess thats when its stiff and hurting him cause he will be more whinny than usual and clingy wanting you to carry him everywhere an really being dependant of you .. for the most part hes mister independant!! lol............... somedays you cant really tell he has torticollis but then theres days when his neck muscles is stiff due to weather change or just being stiff  and he has trouble with it and its more noticeable escpecially when he crawls bless his heart but he doesnt let it hold him back completely.
Now this is January of 2011 and  Jarett is able to crawl more and more and he can climb stairs which the therapist encourages us to let him do several times a day to help him with his muscle strengtheing.. and he can pull himself up and  now able to crawl up on things.. wow ! like I said before he just cant stand for long periods of time... but its exciteing to watch him be just as mobile as any other child .. lol now hes into to trying to crawl and walk at the same time its absolutely halirus to see that.. he looks or reminds me of a spidermonkey .. i just love it.. I was like look honey hes trying to walk .. lol Brian like one day hes going to take off.. We always encourage him to try to walk.... but hes unsure cause he tried letting go of the couch around christmas time to reach for the christmas tree but still kinda hold onto to couch wellll.... that was short lived cause he reached he didnt relise how far it woruld be and he lost his balance and fell head first into the tree!! OHH MYY  My hart about stopped when I saw him go had firstinto the tree and the lights ablinking and ornaments a shaking and after I relised he was ok.. I DIED LAUGHING!!! YES I DID , I DIED LAUGHING   holding my whinning baby .. can u imagine how God sees us from time to time ? You know he gets a humor of us  .. were like a baby to him at times.. . I know what your thinking,, what if he had been hurt ? If he had been hurt NOO I wouldnt laugh at him , but I thought it was funny AFTER KNOWING he was ok.... then thats all I could do is clap my hands for him to even try to let go.. my baby showed bravery!! bless his heart even though it didnt quite work the way he wanted.. lol  the joys of motherhood are great!
hee i still giggle from time to time when I think of that.. The lil accomplishments he makes is wonderful.. and warms my heart......<3 .................

Jaretts Journey part 1

 Jarett Journey~

Before Jarett was concieved I was really really sick in health due to Crohns Disease if you guys arent familiar with it its an Intestional/Digestive Bowell Disease, ok now thats out the way.... lol
Like I said I was really ill  in body and loseing weight , I couldnt harldy eat or hold anything down . On top of this the stress of this my mariage was on the rocks .. My husband and I were strained to the max .He moved out and was living up the road at his moms cause the tension was great between us that we didnt want it to effect our other two kids till we could resolve things or figure out what wer going to do .Even though we still loved one another we had to do what we thought was best,Well we split in November of 2008 but as any married couple we still would see one another from time to time but now there was not really intmacy at that time between us .. so when the ice storm hit in Jan of 2009 i was forced to be in the same house with my hubby and to be honest God used this time to rekindle the love between us that had been hurt .. so few weeks after the storm  I remember asking my hubby to come down and watch the movie Fireproof with us and he agreed ,and later on that night , that ONE TIME ~ led to the conception of Jarett~ my lil hunnybear~ <3

Well I remember being extremely sick after that and had to go see the doctor and the Gastrointrologist and felt like I was dying .. seriously I was mesierable! I threw up all the time whether i ate or didnt , i couldnt ride or drive that I wasnt sick pulling over yakking everywhere and my stomach hurt horribly i had just thought the crohns was in high gear no doubt or the flu cause i hurt everywhere my head/chest  belly.. well the dr sent me for a chest xray due to the coughing and shortness of breath but before i got in the woman looks at me and ask are u pregnant ? im like no ... she looks again .. she ask "are u sure"? im like well ive had irreuglar cycles since my 3 yrold was born and shes like well u look pregnant, i think you might need to get a test to be sure. I'm like i look pregnant ? lol she said i had a glow about me , im like im not~so lets do the xray and once again she said go down to the dollar tree get a test take it if it says negative then we will do it .. so frustrated, im like i know im not pregnant theres no way i can be,  i only had sex once and we were careful .. i dont know how many times thru the years ive done this and never come up pregnant .. they didnt think i could get pregnant again anyways grumbling to myself .. stomps off and huffs not mad at her just didnt want to do this .. well go  get the test come back and low and behold no more than i peed on that stick it turned Pink two double lines I absolutely thought i was going to pass out right there!!!! FEAR ,ANXIETY you name it it all hit at once.... how was i going to tell my hubby? i battled back n forth with it .. this is march 17th 2009{ my hunnybear was  a goodluck baby} lol .. so i went home and told him and after shock wore off he was excited but as  the pregnancy progresed i had to see a high risk obgyn and fetal specialist.. where they monitored him constantely..

As Jarett started getting bigger and about the 3rd month i was hospitalised with him Crohns was kicking in high gear ... usually pregnacny is so dominate that usually puts Crohns in submission but not this time they were head to head it was a battlegroud.. the Drs were like you know if we have to go in were going to have to bypass the baby cause you come first , your health .. Im like no i dont want that .. so at the hosptial i was adminstated pain meds , nausea meds and steroids ,, all a have too cause im one that wouldnt even so much as take tylenol or depression meds with my other two kids nothing... I was really funny on that stuff , i didnt want to give my kids anything that would alter there developments in the womb at all.. so when i had to take these meds cause the pain was almost unbearable , my temp was getting up that i would break out in cold sweats  my body sheened from sweat, dehydrating from throwing up so much , i threw up from day one till i had him lol... unless i took phenegran ..lol that was no fun sometimes it didnt help lol... I remember laying there in the hospital pleading wtih God ... noone was there just Me and God .. tears rolling down my face .. why God is this happing? Im scared please come and comfort me , i really really need you , they said they may have to operate and i may lose my baby , im scared please do something .. thats when the nurse came in gave me something for pain and she saw the tears rolling down my face and just said honey it will be ok .. I softely said I know God wont put me through no more than i can withstand and with having said that I drifted off to sleep .. that was scary .. but God brought us through so we go home and they give me meds and low and behold i wasnt out a month till i had to go right back .. spent another few weeks .. sheesh they knew me by name there lol.. each time they added meds on me .. i had to take iron pills , folic acid, phenegran , pain meds, steroids and by this time i was dignosed with  gestastional diabetes .. just wonderful !! so now i have to poke my self which i hate to do anytime , 5 times a day to make sure my blood sugar was normal in the hospital they had to give me insulin a few times a day i guess the predisone caused it...  well once again God brought me and Jarett through the hairy scary really close to call of having a major bowell obstruction.. Jarett and i had to visit i think one or two other times . well at the fetal specilast asked me if i wanted to know if he had down syndome or anything genetically wrong i said no .. i went this long i dont wanna know , if something is wrong with my child  due to all the medications cause predisone and phenegran and pain meds can cause severe birth defects and i want to know the old fashioned way .. ill just leave it up to the good lord.. why have myself worrying for the next  few months or so.. no thank you i worry about enough.. so anyways during his ultrasounds Jarett would stay laying towards the right and sunny side up , lol we never could get a good pic of him he didnt like pic ..lol sometimes he would be breech .. he did like to stay to the right with his head up under my ribs .. .. when  it came time for him to be born we had to go ahead an arrange a c-section cause the cord had wrapped around his neck twice and I was fearful of trying to give birth to him vaginally for fear of strangling him .. so we opt to do c-setion.. well when  the doctor cut me open he told my hubby he had trouble geting to Jarett due to all the scar adhesions thats what my problem was all along he was suprised that jarett had room to even grow .. he told him to tell me that i needed to tell my Gastro Dr about it  the scar adhesions had grown around the bowell and was bascially collasping it.. ..  Praise God he brought Jarett and I through ALL these Dark momments and times i didnt think he and I were going to make it , he gave me the strength and the will to go another inch and another step .. I litreally relied 100% on Jesus Christ Nothing or noone else just him cause when Doctors look at you say theres nothing more we can do . What are u going to do then? My faith was tested but I passed wih flying colors cauesI knew in my heart God is faithful and true , I may not understand why this Journey was so rough But I do know the Love and Mercy and Grace that he shared with me was priceless and to give me a son that was healthy . granted on the next blog ill tell you about his lil milestones and accomplihments and How God is using Jarett in a mighty way ~ Thank you God for my precious Hunnybear~ I wouldnt know life without him.. everytime i look in his eyes Jesus I see You !! truly amazing!!! I love you and Give YOU JESUS ALL MY PRAISE~

jitters about the MRI

{ Brotherly Love}

Jarett will be undergoing his mri thurday morning and even though im a lil nerveous about cause hes so little but then again  i dont like the idea of being put under at all  when I have to be .. The Neurologist is looking for to see if he has any reasons of why Jarett is having trouble with his muscles and why their not tighting up . He has to have physial therapy once a week and bless his heart he loves it and he really likes Kathy his therapist and he responds well to when shes here. Im hoping this Mri will give us a  better understanding on this tortacollis and muscles weakness. Hes 14 mon old and I just want him to be able to have the strength to walk soon.. Hes coming a long way ,,bless his heart..
Im going to be blogging about Jaretts Journey ~ keep in touch to see all the lil milestones and mishaps ... I want to praise the Lord Jesus Christ for helping Jarett and I through this journey .. ..
~ Kris~